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Working Together for Special Education

By Lynne Hamer and Willie McKether
Guest Column

Throughout its short history, as chronicled in this column, “Community Conversations” has focused on the achievement gap between students of color and white students in both K-12 and postsecondary education.

While we make no claim that Special Education accounts for the gap, it deserves attention as a potent contributing factor in K-12 education, particularly when research shows that children of color are often over-diagnosed into particular types of special education categories, such as “emotional behavior disorder.”

Here, we see an important opportunity for action that needs to involve all stakeholders in schools: parents, community members, teachers, administrators, and students. 

At our November 23 meeting, D.L. Adams, Ph.D, shared extensive knowledge about special education laws and practice. Adams recently received a doctoral degree in Special Education, Disability Studies, and Gender Studies from Syracuse University in New York, and has been a participant in Community Conversations for over a year. 

Adams’s research interests are in the critical study of special education, as well as school-to-prison pipeline, the over-representation of kids of color in special education, supporting LGBTQ students in schools and school-wide behavior management.

Adams explained how since the passage of public law “PL 194-142” in 1975, our country has guaranteed the right to free and appropriate education designed to promote progress for all students with disabilities.

PL 194-142 was later revised and renamed The Individuals with Disabilities Act (IDEA).  Reauthorized and amended in 2004, IDEA “applies to children who have particular disabilities which affect the child’s learning, from preschool aged children to young adults, age 21.”

“Under the IDEA,” Adams explained, “children are entitled to an education designed to produce educational progress (not the best possible education).” “Progress” instead of “best” can set a low threshold of expectation. This has meant that parents have regularly, across the country, had to advocate for their children to receive the best education they can have.

The referral of a child to be considered for special education, and an initial evaluation of the child including numerous tests, starts the process.  A child might be referred by a parent/guardian or by a teacher. 

Adams emphasized that it is important for the parent/guardian to be receive a thorough understanding of the tests and results. Nationally, however, “that is the problem: they don’t. When they get the test results, they are supposed to have someone there to help them interpret, but they don’t.”

How that education will take place is determined in the student’s Individualized Education Plan (IEP), which, Adams explained, is a legally binding contract. “The IEP is a written statement between the parent and the district that specifies the specially designed instruction, related services, accommodations, modifications and supports that a school will provide for a student with a disability.”

Most important, according to Adams, is that the process for the IEP must by law involve the parent or guardian in making the plan. That is why the IEP team must by law  include the parent/guardian of the child, at least one of the child’s regular education teachers, at least one of her/his special education teachers, a school district representative knowledgeable about the curriculum and available resources and, if possible, the child her/himself.

Too often, however, the process of making the plan does not involve the parent/guardian, let alone the child, in a meaningful way.  Again, this is a problem across the nation, though some districts do better than others. Adams stated, “Often the plan is made before the parent comes in [to the IEP meeting], even though the parent is supposed to come to the planning meetings.”

By law, Adams explained, the parent is supposed to be notified 10 days prior to the IEP meeting, and the parent has the right to request the meeting be rescheduled if s/he cannot attend.  Schools are supposed to tell parents that they can participate by phone, but often schools do not.

In our conversation about Adams’s presentation, some participants wondered how realistic it was to expect parents’ active involvement.  Others expressed that it was entirely appropriate, and noted that in their experience, if parents are educated about the law and made to feel welcome, they usually attend the meetings.

General consensus held that if the IEP is supposed to be a joint effort, it should be.  Several parents present expressed the belief that parents want to participate, and that they should participate because they know the child best.   

Participants questioned, where do parents get knowledge about the IEP and their roles, rights, and responsibilities? To which Adams replied, again speaking of the general situation nationally, “That’s the problem: they don’t.” 

This conversation demonstrates the best of what can happen when individuals come together to freely discuss matters of common concern. Adams provided research-based information from national, peer-reviewed studies, that showed local concerns are not unique to Toledo, but are concerns shared in many, many communities and districts. 

Participants who had experience as parents or teachers or students with special education locally and regionally were able to share with individuals who lacked experiences. In the process, local concerns were contextualized nationally, and national concerns were seen at the local level, where individual children’s futures are at stake.

Participants were concerned that they saw our inner-city kids failing academically, and wondered if that was because of the lengthy evaluation process.  There was also concern about students being “passed along,” promoted from grade to grade despite not being able to read.  And throughout this all, there was the concern that we as a society are treating some children as “disposable kids,” not taking seriously the need to help every child, from every community, be the best they can be.

So, in the spirit of moving from conversation to action, as discussed in our last column, what do we do?  The following ideas emerged from the conversation:

Schools could educate parent/guardians effectively about laws regarding the creation of the IEP as a collaborative process.  Schools could assure that parent/guardians receive help understanding what the tests say about their children’s needs. Schools could also be sure to invite parent/guardians to the meetings where IEPs are actually discussed and made, with the whole team, and communicate that they believe the parent/guardian’s insights are essential and appreciated.

Colleges of Education could provide easily accessible information about the tests that are used in the evaluation of students for special education. Colleges could provide accessible instructions for parents to interpret the results of tests.  In addition, they could provide accessible discussion of research on cultural biases in the tests and on the reliability of tests in assessing a child’s emotional state and ability to learn.

Community Centers could provide materials for parent/guardians to know their rights and responsibilities.  Centers could even provide typed form letters for parent/guardians to fill in and sign requesting, for example, that their child receive an IEP and making clear that they know the school is under a legal obligation to provide the IEP within a specified time frame, once it is requested.  Centers could provide coaching for the parent/guardian to take two signed copies of the letter to their child’s school principal, leaving one with the principal and getting the other date-stamped to ensure the start of the process.

Parent/Guardians and Teachers could work together as allies, sharing information about what they’ve observed with the child, and strategizing how to get needed supports. Either a parent/guardian or a teacher could initiate this conversation.  What is important is that each communicates to the other that their input is appreciated—and each is patient with the process, believing in the good intentions of the other.

Citizens could become more educated about the detrimental effects of laws and acts, such as No Child Left Behind, that tie teachers’ pay and job security to children’s test scores, which can have a negative effect on children’s being included in classrooms.  Citizens could then vote for candidates that support teacher-friendly and student-friendly legislation. (Colleges of Education also could provide accessible information about these matters.)

Clearly, there is something for everyone to do.  Participants agreed that part of the time at our next “Community Conversations” will be devoted to reviewing these ideas and discussing next steps. 

This is in the spirit of our intent to create a free and democratic space—a place where people can try out ideas and collectively select the ones most important to act on—as well as to develop smart ways to act. As Martin Luther King famously observed, “We must learn to live together as brothers or perish together as fools.” Conversation is essential if we are to learn to live together—and work together—for the common good of our students, our society, and our selves.

Everyone is welcome to join in the Community Conversations, alternate Mondays, 6:30-8:00 pm, at the Kent Branch of the Toledo-Lucas County Public Library, 3101 Collingwood Blvd., Toledo.   The next conversation will take place on December 7; we will then observe a winter break with conversations resuming January 11, 2016.

The authors of this column are faculty at the University of Toledo and facilitate the group “Community Conversations for School Success.” Lynne Hamer, Ph.D, is professor of Educational Foundations and Leadership and directs UT@TPS.  Willie McKether, Ph.D, is associate dean in the College of Language, Literature and Social Science, and associate professor of Sociology/Anthropology.  Email lynne.hamer@utoledo.edu or willie.mckether@utoledo.edu to get on the Community Conversations email list, or join our public Facebook page at “Community Conversations for School Success Toledo.

On Monday, December 7, at 6:30 our program will be “Schools as Community Hubs.” This will provide an opportunity for participants to learn about the valuable resources available through the “hubs” programs at Pickett and Robinson schools, as well as to brainstorm how the hubs can be locations for more community conversation to occur. Please join us!

   
   


Copyright © 2015 by [The Sojourner's Truth]. All rights reserved.
Revised: 08/16/18 14:12:22 -0700.


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